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The Patient Press

ASGCT's patient-focused newsletter is published every other month.

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Stay up to date on news and events relevant to patients, caregivers, advocates, and anyone else affected by rare diseases. Sign up to get each issue delivered straight to your inbox every other month!

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Read Archived Issues

April 2025

Watch our Empowering Patients Summit on demand on YouTube, get ready for the 28th Annual Meeting with our patient advocate guide, check out our latest Community Quick Take on AAV immune responses to gene therapy, and more!

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February 2025

In this issue, we invite patient advocacy organization, academic institutions, and other nonprofits to sign a group letter to congressional appropriators requesting support for NIH funding.

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December 2024

In this month's issue, we're launching two brand-new resource units on genetic hearing loss and ATTR amyloidosis.

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October 2024

The inaugural issue of The Patient Press highlights ASGCT's upcoming patient-centered events, programs, and resources!

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