Patients Are the Center with Kimberly Haugstad, MBA

On this episode of Soundbites of the Annual Meeting, we talked to Kimberly Haugstad, CEO of RareRising and a longtime rare disease advocate who is also the parent of a child with severe hemophilia.

In her conversation with ASGCT's Communications Committee Chair, Lynnea Olivarez, Kimberly discusses:

• why patients, as the "lived experience experts," are so important to rare disease communications

• advice for scientists who would like to engage more directly with patient communities

• what's giving her hope right now

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