Helpful Websites

Clinical Trial Information

The U.S. National Institutes of Health, through its National Library of Medicine, has developed to provide patients, family members and members of the public current information about clinical research studies. 

How to Search

FACT Allied Learning Center

FACT’s Allied Learning Center is a collaborative effort between FACT, AABB, ASBMT, ASFA, ASCGT, ASHI, CAP, CBA, the FDA, ISCT, NETCORD, NMDP, PACT, Save the Cord Foundation, and SITC to provide a centralized resource for organizations to quickly and easily obtain online modules applicable to their operations and/or training needs.

Human Genome Project Information

The Human Genome Project provides basic information on what gene therapy is, how it works, the current status of gene therapy, and recent developments in the field of gene therapy.

National Human Genome Research Institute's Glossary of Genetic Terms

The National Human Genome Research Institute created a glossary of genetic terms to help individuals without scientific backgrounds understand the terms and concepts used in genetic research.

National Institute of General Medical Sciences

The National Institute of General Medical Sciences supports basic research that increases understanding of biological processes and lays the foundation for advances in disease diagnosis, treatment and prevention.

National Institutes of Health - Office of Biotechnology Activities (OBA)

Since ASGCT does not provide referrals or information on specific gene trials. Such information is available through the National Institutes of Health - Office of Biotechnology Activities (OBA).

National Cancer Institute

NCI offers authoritative information about various types of cancer as well as information on a wide range of cancer topics and the latest cancer research. Also find NCI-supported clinical trials.

Find an NCI Supported Clinical Trial 

National Institute of General Medical Sciences: Science Education Genetics

Offers resources to learn about genetics, including recent developments, and profiles of researchers working in this field.

Genetic and Rare Diseases Information Center (GARD)

GARD is a program of the National Center for Advancing Translational Sciences. It provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.


Foundations and Patient Advocacy Groups

The following list includes various disease specific foundations and patient advocacy groups.
Alliance for Cancer Gene Therapy (ACGT)

Alpha-1 Association

ALD foundation

The ALS Association

ALS Foundation for Life

Alzheimer's Association

American Cancer Society

American Parkinson Disease Association

Cooley's Anemia Foundation

Cure SMA

Cystic Fibrosis Foundation

Families of Spinal Muscular Atrophy

Fanconi Anemia Research Fund, Inc.

Foundation Fighting Blindness  

Genetic and Rare Diseases Information Center (GARD)

Hemophilia Federation of America

Huntington’s Disease Foundation

Huntington’s Disease Society of America 

Immune Deficiency Foundation 

International Patient Organization for Patients with Primary Immunodeficiencies (IPOPI) 

The Leukemia & Lymphoma Society

March of Dimes

The Michael J. Fox Foundation for Parkinson's Research

Muscular Dystrophy Association

National Brain Tumor Society

National Parkinson Foundation

Parkinson's Disease Foundation

Spinal Muscular Atrophy Foundation

The Stop ALD Foundation

United Leukodystrophy Foundation

World Federation of Hemophilia

The websites listed above contain information created, published, maintained, or otherwise posted by institutions or organizations independent of ASGCT. ASGCT does not endorse, approve, certify, or control these websites and does not guarantee accuracy, completeness, efficacy, timeliness, or correct sequencing of information on these websites. Use of any information obtained from such websites is voluntary, and reliance on such information should only be undertaken after an independent review of its accuracy, completeness, efficacy, and timeliness. Reference to any specific commercial product, process, or service by trade name, trademark, service mark, manufacturer, or otherwise does not constitute or imply endorsement, recommendation, or favoring by ASGCT.


Clinical Trials FAQs

Learn about topics like informed consent and the safety and importance of clinical trials for gene and cell therapy.

Finding a Clinical Trial

Your doctor is an excellent resource to help identify clinical trials for a particular disease, but there are also a number of online resources to assist in finding clinical trials currently accepting patients.


ASGCT Policy Summit

September 23-25, 2020