Patients - Sites of Interest
The following Internet addresses contain information created, published, maintained, or otherwise posted by institutions or organizations independent of ASGCT. ASGCT does not endorse, approve, certify, or control these Internet addresses and does not guarantee accuracy, completeness, efficacy, timeliness, or correct sequencing of information located at such addresses. Use of any information obtained from such addresses is voluntary, and reliance on such information should only be undertaken after an independent review of its accuracy, completeness, efficacy, and timeliness.
Reference to any specific commercial product, process, or service by trade name, trademark, service mark, manufacturer, or otherwise does not constitute or imply endorsement, recommendation, or favoring by ASGCT.
Clinical Trial Information
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. Before searching, you may want to learn more about clinical trials and more about this Web site. Check often for regular updates to ClinicalTrials.gov.
FACT Allied Learning Center
FACT’s Allied Learning Center is a collaborative effort between FACT and AABB, ASBMT, ASFA, ASHI, CAP, ISCT, NETCORD, NMDP, PACT, and others to provide a centralized resource for organizations to quickly and easily obtain online modules applicable to their operations and/or training needs.
Gene & Cell Therapy Terminology
Terminology provided by ASGCT.
Human Genome Project Information
Provides basic information on what gene therapy is, how it works, the current status of gene theapy, and recent developments in the field of gene therapy.
National Human Genome Research Institute's Glossary of Genetic Terms
The National Human Genome Research Institute created a glossary of genetic terms to help people without scientific backgrounds understand the terms and concepts used in genetic research.
National Institute of General Medical Sciences - Extras on Newsmaking Research
National Institutes of Health - Office of Biotechnology Activities (OBA)
Since ASGCT does not provide referrals or information on specific gene trials. Such information is available through the National Institutes of Health - Office of Biotechnology Activities (OBA)
NCI Cancer Facts: Questions and Answers About Gene Therapy
FAQ oriented toward patient information.
National Institute of General Medical Sciences: Genes—What We Knew, Know, and Hope to Learn Fact Sheet
The following list includes various disease specific foundations and patient advocacy groups.
Alliance for Cancer Gene Therapy (ACGT)
THE MISSION OF ACGT is to support the extraordinary potential offered by cell and gene-based therapies to accelerate effective and safe treatment of all types of cancer.
The ALS Association
American Cancer Society
Cancer Cure Coalition
Cooley's Anemia Foundation
Cystic Fibrosis Foundation
Families of Spinal Muscular Atrophy
Fanconi Anemia Research Fund, Inc.
Genetic and Rare Diseases Information Center (GARD)
The Leukemia & Lymphoma Society
Muscular Dystrophy Association
March of Dimes
National Brain Tumor Society
National Hemophilia Foundation
National Parkinson Foundation
Parkinson's Disease Foundation
Spinal Muscular Atrophy Foundation
The Stop ALD Foundation
World Federation of Hemophilia